Plan of Attack

The month of hell is complete -- and we all survived (somehow).  No major reactions except fevers.  So many people sharing their love, gifts, food, light, with me.  It's been a difficult month but to see how many people are in my cheering section is just mind blowing.

So, what next?

This week I actually have off -- just blood work -- Wahoo!.  The main issue we're having right now is neuropathy, and swollen ankles.  I've fallen twice, and its extremely hard to walk (especially up stairs), and to open things.  I've lost all the the feeling in my toes, and it's moving up my calves at this point.  My fingertips are also completely numb.  I'm concerned.  This is a side effect of some drugs -- and years ago when I received SGN-35, I also had the same side effect.  It was one of the reasons why we stopped the drug.  So, we have to problem solve this issue.

Beside the neuropathy, Dr. O has decided we will now have chemo every three weeks.  These are the dates in case you want to drop off food these weeks, or send some positive vibes.

Infusion Dates: February 12th and 13th
March 5th and 6th
March 26th and 27th

There are two dates since we will be combining SGN-35 and Bendamustine.  I'm hoping the nueropathy won't worsen as infusions pass, it would be a horrible side effect not to be able to walk that well and we don't know if this will be permanent or not. However, I know we also need to look at the big picture, and as far as my life and energy goes I'm doing very well, so we cheer for that.  I have so much to be thankful for, especially this week without poison.  My body is loving the relief, loving it.

After these infusions, we hopefully head to transplant depending on scans and how my cancer is doing.  But that is for another day…

I can never thank you for all of your support, love, and positive vibes.  Again, I know I'm here because of the people and love that surround me, and for that I'm so grateful.

Love,
B.