Two thumbs up for Revlimid

Yesterday we received scan results after being treated with Revlimid for two months...

With two thumbs up from Dr. O'connor and my wonderful partner, we were all excited to hear that the Revlimid is not only working, but it is working quickly, and very well against my tumors.   All of my nodes have decreased significant amounts.  None of them are 'stable' or have 'mixed' results.  For the first time in a while, everything is decreasing from starting with 3-4 cm nodes before treatment, to now only having nodes between .5 and 1.8 cms.  And for those taking note, my SED rate is down to 15 (hot damn, it's in normal healthy range). We are absolutely thrilled. And although there has been a lot of loss lately in the HL community and on the east coast, we take this small kernel of good news and are running with it...

Revlimid is suppose to be a slow-acting drug on 20mgs.  So all of us were a bit surprised that there was such a dramatic decrease since I was treated with 10mgs over a period of two months. Thankfully, almost all of my side effects have subsided and I am now tolerating the drug much better, except for some neuropathy and fatigue.  Due to these factors, O'connor believes this will be a very positive drug for my future.  

After the last six months, it finally feels like we are leaving behind the roller coaster of unknowns and are approaching stability and some form of normalcy again.  It hasn't quite sunk in yet, but we will take it. 

Here's to being on the other side of things!

Sending so much love to all of you,

B.