The last three weeks have been some of the most difficult I think I've had to experience physically and mentally. But ever so slowly, I feel parts of 'Bekah' returning.. which is always a good thing.
Last week we visited Upenn, and had a consult with my transplant oncologist to hear about options in PA. It was a decent visit, with somewhat too many options to choose from.. but we're not jumping onto anything just yet. The visit was also a blessing because, after much coughing, fevers, vomiting, and a lovely bunch of symptoms. I was prescribed anti-biotics, a low dose of steroids, and more meds to make my body relax.
Within a day, my coughing stopped, fevers haulted, and I can breathe again. This obviously could be masking B symptoms. I was able to try the aleve thought-process before the consult, and the fevers did not stop. So, we're hoping that this is more or less due to me not being mobile AT all in the hospital, and a culmination of other things... at this point it looks like we'll scan soon to see where we are, and take it from there.
The moms and I also scheduled another consult with Dr. O next week, to check in and again, hear more options.
For now, I feel as though I'm ever, ever, so slowly coming back from a huge wipe out.. both mentally and physically. But, at least I'm not headed in the other direction, I was even able to gain 2 lbs recently. (We cheer for that here). The good thing is, besides the steroids making me absolutely insane for a week -- all other symptoms have decreased in some capacity. What I hope to do in the next month again, is just recoup as much as possible as the cancer has obviously grown and we'll need to move to a new treatment.
The important thing though, is I'm strong enough for this next treatment. Mind and Body.
So, that is where I am at...
Baby steps, right?
Sending love,
B
13 comments:
So good to hear and update from you, HUGS, we're praying for you and rooting in your corner.
It was a long time since your previous post and I was worried. But I kept thinking strength at you. Strength is the thing, indeed! It sounds like you are looking at lots of options. For any of them, I'm sure you would do better with some more weight gain so I'm glad to hear that the weight loss is finally reversed. So this week I will be thinking "weight gain" at you. Get eating and strengthening.
Woohoo, 2#s!! I know how tough it is to gain weight when you're feeling like crap...
Nice to hear you have plenty of options, beats the alternative right?
Hoping of course for continued baby steps until they're full on lovely lady steps ;)
You're very strong Bekah, keep it rolling.
Big hugs, Chris
So glad to hear you're making progress,, putting on weight even. As you/others say, baby steps, but nonetheless, steps in the right direction! :)
hi hun!
I haven't visited your blog in a while (been busy fighting this cancer crap ya know ;) so I sat down today and got myself updated on Bekah stuff...I am happy about the last post, the weight-gain (hey 2lbs is better than no lbs!) and the availability of options!
you lady inspire me so much with your strength...I mean seriously, even when you are venting and complaining I can still see "strong Bekah" making an appearance between the lines....this is NOT easy, but the way you handle the battle is amazing!
take care lady, and I will be praying for continued strength (and weight gain).
love,
Nancy
So lovely to hear the Bekah we know and love starting to shine back through this post.......shine on, lovely lady, shine on - we're with you every baby step of the way..........<3
whoot!
I'm so glad to hear you're feeling a bit better Bekah. Keep taking those baby steps!
Rach x
I'm so glad thing are a little bit better for you. You are never far from my thoughts. I wish I could send you some strenght, but it seems like you have a wonderful support system. You are truly amazing. Hope each day get just a bit better.;
Hooray for you being on the mend and starting to feel like Beks again!! Thinking of you lots!
Xoxo
Nice to know that you are feeling better.
Keep it that way. ;)
Hugs,
Claudia
Just sending a hug..........<3
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