After two whole weeks at the Doylestown Hospital in Pennsylvania. Tons of antiobitiotics, fluids, and everything else we've preveriously done in NYC. I am a little bit at the end of my rope. Doylestown, does not feel as they are capable to 'handle' my case, so tomorrow morning me and the moms will transfer over to Upenn Hospital. Hoping to GOD that this is figured out.
Fevers are spiking once to twice a day, vomiting, and still loss of weight. Let's hope my transplant doc (Sunita Nasta), the oncologist I love the most will find where this infection is.... and destroy it. Nothing is turning up in cultures, there was something abnormal in another tests, so we're hoping this is the answer.
As for the future? There is no way I have the energy, stamina, or cognitive abilities to return to school this semester. We have no idea when this will end, or when I'll be out of the hospitals... We have no idea when I'll fully recover.
So on the negative side: I lost out on a semester possibly
Good side: I bounce between MA and PA, maybe down to FL and live? for four months before the summer semester starts.
I will find the silver lining. just try me.
Meanwhile, I'm here in a small room, going absolutely crazy
(PS -- I have had millions of calls, texts, emails, and other forms of contacts.... i have yet to return any of them, please be patient with me. when I'm back on my feet, you'll know what's up.)
Love ya,
B
23 comments:
Thinking of you Bekah, and hoping they find that infection FAST. Sending healing thoughts, good vibes and bunch of love your way...
(((HUGE HUGS)))
Kerri
kjs4usc
Of course rooting for you Bekah :)
Wishing there was something they could do for you...
Hoping that while you wait for them to figure this out you can devise your "silver lining" and make the best of the rest of the winter.
Florida is very nice this time of year...
Still praying...
Isabelle
Sending lots of love and positive vibes your way!
<3 Michelle
Thnking of you Bekah - and hoping to find a post on your blog to say you are on the mend very soon ... :)
Hi Bekah - Sending all the usual healing thoughts, positive <> and ((HUGS)) your way at UPenn. Hope you are settled in tonight and have a nicer room than yesterday.
Please know that your forum family has been posting lots of loving wishes to you on the boards.
Super HUGE ((HUGS)) to you and your loving Moms.
Susan
xoxox
Much love, support, and positive visualizations to you. Infections are a danger when going in and out of hospitals. Austin had a mystery infection too - one without a positive culture result - which with hindsight turned out to probably be a delayed reaction to Gemzar. It put him into the ICU for one of the longest days of my life. But it went away suddenly, leaving no trace. So I suspect they are forced to treat unexpected drug reactions sometimes as if they were infections, unless they can prove otherwise.
we are still in the hosp
trying to figure out the source of the fevers-which are still coming.
nausea and vomiting has subsided for the past 24 hours- thank you marinol!
we are hanging in there
one of us are always with her
darlene
bekah's mom
Oh Bekah....I'm praying for you. I hope you feel better soon.
With love and hope,
Wendy
Dear Bekah - praying everyday for you. A priest friend of mine mentioned you during mass today. I hope you feel the prayers.
Isabelle
I hope that you feel better soon. Sorry that you've gotta miss out on a semester of school.
My wish for you is that you start making good progress on resolving this infection. I am sorry you are suffering and that you got derailed from school. I hope it all turns around for you very soon and you are on the road to healing.
Thinking of you every day, Bekah.
Thank you for the update, Darlene.
We're thinking of you, Bekah.
Rachel (and Arif and Leyla) xxx
Thanks for the update Darlene...I check FB and the forum often waiting for any news. Please give Bekah our love....she knows so many friends care so much about her. Take care of yourselves too...Bekah needs her Moms to be healthy. ((HUGS))to you ALL.
Susan (laulausmamma)
Sending hugs and kisses. :)
lots of lil lovins
blown your way hon
love
j
bekah finally came home last night.
she still has a long way to go-but we are thrilled to finally have her home.
darlene
bekah's mom
So, so glad you're home, Beautiful B.......and so, so wishing you weren't having to go through this. We're still here, quietly waiting for your luck to turn........love 'n' hugs as always............V & W xx
So glad to hear Bekah is home.
Hang in there, all of you.
xoKirsten
Thanks for sharing the wonderful news that Bekah is home in her own bed where she belongs! Sending healing thoughts that you will regain more strength each day. ((HUGS))
Susan
I just heard the good news that your home... may your continued recovery go smoothly and with out any more complications. lots of huge loving healing hugs for you!!!!!!!!!!!!!
sending you the highest order of healing good thoughts your way...
thinking of you all the time!!
Thanks be to God! I'm so happy things are getting a little better one step at a time.
Isabelle
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