- Dear Gertrude, Now I know what you mean...
Now that I am somewhat settled, in my own bed. And we are pretty much certain that I will not be readmitted (again) back to the hospital. I wanted to share with you the experience of ICE. Since I've been on this cancer journey there have been numerous amounts of Hodgkins survivors, I've met various ones my age, but there have been little to none of Hodgkins, recurrent, early 20's,female survivors. Therefore, a part of me feels that it is vital to keep a record of my treatment path in hopes it will help someone else in the near future if they must endure the transplant as a female patient.
- The ice holds hard, but for the promise...
ICE represents three different drugs: Ifosfamide, Carboplatin, Etoposide. The game plan is to receive these drugs over a 36-48 hour period.
Day one of salvage chemotherapy, nurses pumped me with fluids and several anti-nausea medications. Lots of individuals ask which ones to take when going into treatment. Unfortunately, lots of doctors say the same thing 'it all depends on the individual.' My favorite cocktail through the entire process was, an hour before chemo intake zofran and benadryl, then a half hour before chemo receive .5 mgs of ativan. It prepared me to be nice and sleepy for the treatment, and prevented that wonderful vomitting that my body just loves so much. Wednesday night after fluids and drugs were taken care of, the Etoposide was infused.
Thursday morning, Day two of chemotherapy, I was prepared the same way for my next infusion. Day two I was 'suppose' to be infused for a straight 24 hours. From 9 am on Thursday to 9 am on Friday. The drugs of choice were Ifosfamaide and Carboplatin, both drugs cause infertility and damage to bladder, and other various not-so-fun side effects that I will spare you the details of. A very rare occurence is toxicity (too much drug infusion within the body) which causes confusion or hallucination.
Twelve hours into my 24 hour infusion, I was told later, I was unaware exactly where I was, and was not acting like 'Bekah..' I'd like a definition of that please? What is it, to act like Bekah ;) Anyway. For fear of toxicity, we stopped the drugs, mid-infusion, until Dr. Nasta reported to us, Friday morning. With her authority it was decided that my 'where-abouts' were not 100% because of the chemo drug, but infact the pain medication I had been on from my port surgery (which happened Wed morning), and the combination of drugs and chemo. She assured us, it was not toxicity. And we proceeded on with the 12 hour infusion into Friday...
Therefore, Friday, Day Three of Chemo was a combination of left-over chemo that was suppose to be complete throughout Thursday morning, and more Etoposide. Which finished up the first round of ICE. To most outsiders, I get the sense you think - chemotherapy itself is painful, but it is usually the opposite.
During these infusions, I am somewhat peaceful, reading, listening to music, watching DVD's. The drugs do not automatically attack your body, Therefore, it is usually two or three days after the entire set of ICE sets in that the pain begins. In addition, Twenty four hours after my last dose of chemo, I need to give myself a small nuluesta shot. This shot produces white blood cells in the bone marrow. Bone marrow growth, in MY body, causes massive pain.
- Hope is a thing, with feathers that perches in the soul..
The pain, nausea, dehydration, combined basically sent me back into the hospital on Sunday. Luckily, my doctors have a new plan of attack for my second round starting on the 20th. Which I will explain.. at a later time. For now, It is one solid week after chemotherapy. With Day one being - the first day of chemo (January 30th), today (February 8th)is considered Day 10. My counts, have most likely hit an ultimate low, since my blood levels were around 2.9 during discharge. This equates to fatigue and a little to-no immune system to fight back infection. These next days I will be most vulnerable; therefore, will not expose myself to a lot of people. Days 17-21 (Feb 14th - 20th) are the days I will hopefully have enough good counts to see some of my favorite people.
Things I love about completing round one of ICE:
- sleeping in my own bed
- not vomitting
- being hydrated
- sleeping through a whole night without a nurse checking vitals
- chocolate milkshakes
- knowing, I can do this.
all my love...to all of you.
- B
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Today I miss: being able to eat apples
Today I am grateful for: winter hats, keepin' my baldness, oh so warm.
Today I smile for: seeing good friends on the 15th
