Bad News: My disease has progressed in several areas in addition to new disease. Progression of old disease ranges from .5cm - 1.5 cm. The largest node is now 5.0 x 5.5cm, above my right hilum. This is the largest my disease has ever been. I also have new nodes (since transplant) located at the back of my abdomen ranging from 1.0 x 1.2 cm.
Decent news: My therapuetic dose was lower than normal, since the first two cycles were studying the effects of a pharm drug in combination with the SGN-35. That means, they're letting me stay on the trial for a few more cycles to see if the normal dose 1.8 per kgs, instead of the 1.2 per kgs I've been receiving will make a difference.
In other News: I do not have to be back in New York for my weekly visits anymore. Therefore, I won't be here till May 27th, for my 4th infusion. As I had my 3rd infusion (still with allergic reactions) yesterday morning.
'i pray to be like the ocean, with soft currents, maybe waves at times. but, more and more, i want the consistency rather than the highs and the lows.'
B
11 comments:
Crap, crap, crap, crap.....
Hugs, hugs, hugs, hugs....
Strength, strength, strength, strength....
LOVE, LOVE, LOVE, LOVE.....Vx
ps - your quote is what I have lived by my whole life.......unfortunately we don't always have the means to control those highs and lows....love as always.....Vx
I've been thinking about you and wondering what your test results would show....so sorry that all the positive vibes and prayers didn't bring you better news. This damn disease is mean!!! I hope the allergic reaction this round wasn't as bad as the last one...and glad that you can still stay on the trial with hopeful results.
Sending you love and ((HUGS)) as always....
Susan
It bothered me a lot to see your blood count dropping like it was. I'm glad the doctors are looking into it more closely. Whether SGN35 scores a hit or not, you've always been a patient who responded to treatment with some shrinkage, as long as you could tolerate the treatment. So staying in better condition to handle the infusions is important. Some of your problems sound almost viral. Let's see if full-strength SGN35 will do it's intended job. Big hugs and healing thoughts to you and your devoted family.
Argh you deserve a break! I know it can be so hard to feel positive when you feel physically ill and also when you get bad news from scans etc. Hoping for an uplift in those ocean waves – a warm current from somewhere – to make you feel better soon xx
Dear Bekah, Im so sorry. I hate this monster, cancer. I hate living is it's shadow, waiting for the ax to drop. Hang in there, keep fighting.
Sending prayers, good thoughts, love, best wishes, and hope your way! I pray you'll get good news soon.
Sweetie, this is so heartbreaking, frustrating, and painful to me. I have no other words, but it sucks so bad that you have to go through this! Thinking of you, praying, and sending much love your way.
Sivan.xxx
Sending you some love Bekah.
pine soul (nancy)
I am so sorry to hear the news. You are in my thoughts. I absolutely hate this disease.
Bekah, You never asked to be the poster child for cancer warrior. And you didn't set out to be an example for "being strong" or "an admiration to others." That's just how it's turned out. It's such crap because you didn't pick this battle. You only get to choose how and when to fight it. You're doing it anyway and you are beautiful in it, as you are in all things. My greatest wish is for you to have a break from all of it. Some peace, some distraction, some rest, and some inspiration from far far outside the crappy cancer world. You are so much more than a cancer survivor Bekah. You're a teacher and a student and a friend and pretty much a poet as well!! You're always in my heart and thoughts.
Just a hug for you -
Love K
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