The experience at the hospital to say was incredibly horrendous: our first night our floor did not have any heat, therefore all of us sleeping in our coats, hats, and gloves. On top of it, we had no idea we were going to be staying at the hospital for a week which equals no clean clothes, toothbrushes, or even showers in the rooms. Personally, I'm going to erase these memories from my mind, and focus on the one major positive that did come from going to New York this week.
The scan with this drug reported a thirty percent decrease in my disease. So, obviously, we cheer for that.
After fluids, antibiotics, head scans, liver scans, whole body scans, and running of cultures, NYU finally released me. I'm home for now, trying to rebuild my body. Today is the second day that I haven't had a fever, and the first day I haven't thrown up (lets keep our fingers crossed). I go back to Dr. O'conner on Wednesday morning to hopefully clear up this entire mess. I've been off the drug for about two weeks -- I'm allowed one more week off.
My hopes? O will help me figure out how to have quality of life on this drug since I've been bed ridden for almost two months. That there will be a dose reduction, somewhere since I've lost so much weight. And that somewhere along the line.. I get to return to my life in Boston.
Hope with me.
Sending Love,
B
10 comments:
Hugs to you and your Moms.
Take care of you and all good thoughts for Dr O to figure out how to give you a fabulous quality of life and chemo that works.
Love ya,
K
I'm hoping.
Goodness, can't even imagine, wish you couldn't either and it could all be a bad dream.
HUGS, I don't know what you are going through but I'm rooting for you to get things in better order so you can get on livin' your life in Boston.
Bekah sweetie,
First, about the good stuff - the drug is working, 30% decrease is very, very good!!!
Second, I'm terribly sorry about the week in the cold hospital. I wish I klnew, I would have at least call you. We would have commiserated together - I was also throwing up and being sick after my Dec.22 cycle. Do you have my email? What about my cell phone? Can I email you the number?
I am glad you are feeling better. I hope Dr.O comes up with a more forgiving schedule for you. Adn you, honey, you try not to take up too much on yourself, you really need to slow down a bit.
My New Year wish (we Russians make wishes, not resolutions) is to meet you next year. You are one strong gal.
Big hugs, as always, Marsha
Bekah--My thoughts & prayers are with you and the rest of all with this disease. Keep up with the positive attitude you have. Sometimes it is difficult but I know it will help in the long term. Hugs to you and your Mom.
J. Kelly
I'm so sorry for what you've had to go through, Bekah. Glad to hear that the drug is working, but sorry about the horrible side effects. I hope that Dr O can work out a way to lower the dose while keeping it effective, in a way that's not so harsh on your poor body. Hoping you feel better soon and that 2010 brings happiness and a return to your life in Boston. XXX
Bekah....I'm sorry you were feeling so bad. I hope you are feeling better now. Take care.
Much Love,
Wendy
I'm also really sorry you've had a bad time of it - but hopefully you've managed to get some positive news/plans from Dr O that will get you back on your feet, and on track for a better 2010 ... :)
Hey Bekah,
Wow, that sounds pretty rough and really glad you're out of there. I know it's tough to celebrate the reduction knowing that you eventually have to get back on but I guess we've developed thick skin by now right?
Hope you're up and about these days and able to nourish your body and put some of the weight back on. Also hope Dr. O can find a happy medium for your dosing that will continue to work/maintain while giving you less grief.
Hang in there,
Chris
love you
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