Tuesday, September 22, 2009

Bad news bears.

After a quick check up at DF, for a PET/CT scan to assure that the Doxil did it's job, we were a little surprised by what the scan showed.

Unfortunately, after only a month off treatment -- I have lots of increase with more nodes, and disease above and below the diaphragm yet again, with multiple nodes ranging from 1-3.5 cm in diameter. I expected some increase, but not quite as quickly, as my disease is progressing...

So, alas, my fellow friends and family -- I will be returning to you all, and writing a little sooner than anticipated. During October I will be focused on finding a new trial (most likely in NY), and figuring out once again how to juggle life, class, internship, friends, and treatment.

Most likely the first week or two of November, I will begin somewhere, with something. So, stay tuned.


For now, I'm going to enjoy the next six weeks as best as I can.  I can say, I am damn lucky, though on several accounts:

1) By the time I start a new treatment, I will have three months off from any drugs. That is a 1/4 of a year, and had an A-mazing time at that. I am so grateful that I was able to rebuild my muscle mass, find yoga, and get myself and my energy started up to enter in this new treatment.

2) There are a lot more options now, then there were last fall -- clinical trial wise. I am always, so, so grateful for choices and options.

3). My internship, supervisors, classes, staff, and peers are being amazing about supporting me through this next trial, while I attempt a 25 hour internship, four classes, a social life, and treatments. How lucky am I to be surrounded by people who understand, and help?

4). I'm alive. I'm here. I'm helping. I'm doing good work. And in general, I haven't been this happy in a while, now that I am finally back in the field, being with kids, and sucking all that i can out of each and everyday.


I know some might be disappointed by this news, as we did think I would be able to take off till mid/end of December. But, hey, at least I got some time off, and at least I'm here, with options in front of me, enjoying my life. And for all of this, I am grateful.

If time allows, please visit Adrienne's blog again (post below) to continue to send prayers, positive thoughts, and warm, comforting vibes to her and Alison as they are fighting tooth and nail for A's counts to come up, and chemo to begin working on these tumors.

Thinking of you ladies - everyday.
Thinking of all of you, lots.
Hope everyone is doing well.

Signing off till late October,

B

7 comments:

katy said...

hello bekah,

i've been following your story from the webmagic board.

i'm really sorry to hear the progression was a little faster than you had hoped. but very glad to hear you have a plan and that that involves continuing to lead a fun and worthwhile life!! all the best for your next steps. you are an inspiration to me and many others!

katy
x

Kelly Kane said...

Always good to have a plan, my love. No giddy up, let's get ready to whoop the hodge's ass!

I'm always around if you need me, you know that. Let me know if there is anything you need.

XOXO

katmm said...

Well darn - not what I expected to read....

Keep the attitude as positive as ever!

Love you!
Kathy

Veronica said...

Sorry to not have noticed your update until now :0(
Ugh........have I ever told you i hate this disease???
But I love you, girly and know you've got it in you to do this - bring on the next challenge, eh B??
WE're with you all the way........
<3

laulausmamma said...

Hi Bekah...I too didn't expect to find an update...but was just checking in on all my friend's blogs tonight. Damn...hate hearing about that much progression...but as always you will be ready to get back in the ring to beat the Hodge back...and your army of supporters are in there with you.

So glad that life is being exactly like you want it to be (besides the damn Hodge). Keep enjoying and loving each and every moment of it. You deserve all the happiness you can get because you give so much!

((HUGS))
Susan

Wullie said...

Good grief!
I don't hear a peep for a month and then I pop back in to this!!?
Totally sucks but gotta love the positive attitude you have.
Feel free to call and stuff. You do still mind how to use a phone? :-)

Loving you loads.

Wullie

Karen Regan said...

Hi Bekah

I feel like I was double punched in the stomach tonight. I have not been on the forum for a while and so sad to hear about Adrienne and now sorry to hear about your recent news. I will continue to pray for you. Enjoy the next few weeks. Keep focused honey....never never give up the fight. You are a warrior!!!
Love
Karen