Wednesday, December 3, 2008

I'm ready to talk about it...

Just to preface this note, I've been somewhat emotional the last few days. Something, I hardly admit to myself let alone my support group. But, I need to write, and I need support. More than normal lately. So, I'm reaching out, I guess. And it's always been difficult for me, to do this. So, if you are not in a good spot, emotionally to read some upsetting things. click the nice red X at the top of your screen. And, I'm guessing by the end of the week, I will have another 'peppy bekah post.'

----
Last year was one of the first times, I felt, the pain of losing someone to cancer. I mean, we all feel connected in a way when someone we 'know' dies of this disease. But, Sarah was different, Sarah was close to my heart. A friend of mine who I connected to, on a Hodgkin's forum. Sarah passed away, just shy of a year ago. And, I still have yet to really grieve over her spirit, and who she was. And, I miss her, dearly. My heart, still hurts. And a part of me is never sure, if I will ever be able to heal these wounds. She was, an amazing, amazing person. And it was the first time, in a while, that it hit me.

(and here's the selfish part). It hit me that even, the really good, the really beautiful-spirited and kind hearted, the most wonderful people in the world. They die. They die, unfairly. They die, in pain. Sarah had hodgkin's, and relapsed, just as I have... she even had a bit more remission time between ABVD chemo and transplant. But this amazing, this beautiful woman, who would almost lay her life down for anyone, and support anyone, she passed away last year. And it hit me. Hard. Because, no one should die of this disease -- but above all, I believed that our spirits let us rise above. Do not get me wrong, it carried Sarah far, she was a warrior, she fell in love with an amazing partner, and made amazing connections, and I am so jealous of her travels and the life she accomplished while she was here. But a part of me, the day she passed, realized, how unfair life really was. And it still hurts. God, it hurts.

Second, this summer as most of you know was very rough for me during transplant. And I had the opportunity to connect with another transplanter, my age, around the Philly area. My friend, Scott. I can tell you right now, Scott was totally different than me, and Sarah. He felt as though he had a right to bitch and moan about the disease. And boy he did. ;) The timing worked out perfect for us. I had a transplant in May, and his was in June. Thus, when I got out, and had restrictions Scott would visit, and then once he headed in, I had recouped enough to go to his house, and be with him and his family.

Scott and I didn't really agree with a lot of things. He would make me watch the cheesiest romantic comedies, and stupid comedies. I think I even watched a movie with Jim Carey in it -- and you all know how I feel about him. But, we had a common bond. We were young. Going through transplant. While the rest of the world, was living. We were trying to survive. And it was nice, to have someone at that time, physically present in my life. We also discussed what would happen if our cancer's came back after the transplant, what our thoughts were on fighting, on life, on Greece, we even made a bet who would get married first. Put 100 dollars down on it.

A lot of people weren't surprised, that I found someone in the area to connect to-- most of you know I have dear, dear friends who are also individuals who have been through transplant around the globe. But, to spend a summer with someone, physically watching you two go through the same thing. It was a different connection. Neither is stronger than the other, it is just, different. It was nice to be able to be next to someone, not say anything, and know. Just know, what the other was going through - without any explanaition.

Scott and I had just talked about when I was coming home for Thanksgiving. Home has always been a hard place for me to be. Since all of my previous treatments were at Upenn. To say the least, Scott just made it easier to be there. Even though we didn't share all the same views on life and love and cancer. It was a relief, knowing, I could drive a half hour to his house, and see him, on the holidays. At least that is what we planned.

Just as my cancer returned in the early fall, Scott's did as well. Scott decided to do different treatment than clinical trials, right away. And after talking with him only a few days before in early November, about seeing him for most of the week for Thanksgiving. He passed away due to an infection from chemo the second week of November.

And just, as I miss Sarah. I miss Scott.
And the reality, has set in again. That no one is invincible. That people are in pain. That people die. of this. And, it is hard. It is so hard. To watch. And then, to try to keep going.

I agree, that most of the time, I try to find the silver lining. I do not believe all of illness or sickness will result in death, pain, and loss. But, another part of me is very, very tired. Someone once told me, I shouldn't get close to other cancer patients. That inevitably someone will pass away, and it will change me.

And it has. But, I would never go back and change my relationships, at all. I cared for these two individuals. I think of Sarah often, and for the life of me, I'm completely torn up that I never got to give Scott a hug goodbye. But, it has also taught me, a really difficult lesson.

Pain and death and heartache, can happen to really good, really good people.
And if it could happen to Scott, and it can happen to Sarah.
With time, it can easily happen with me.

And that's something that we all, need to start, accepting.
Today, i'm just really. really. struggling. And I just wonder, if I'm strong enough..
for all of this.

-
Bekah

16 comments:

Kelly Kane said...

Awww Beks! You ARE strong enough for all of this! I think now, more than ever, you need to rely on your friends and family. When people offer to come to chemo, or take you out to dinner, just say YES! Keep yourself busy and surrounded by those who love you, and of course, do everything you want to do. Have no regrets! If you want to go on a trip, fuck it, just go! Do what makes you you, and what makes you happy.

I'm always around. Just call if you want to get out of the house.

XO

Veronica said...

Bekah = Beautiful
Bekah = Extraordinarily graceful
Bekah = Kindness personified
Bekah = Awe-inspring
Bekah = Hope and Happiness

You have more inner strength in you than I have in my little toe........days like today are inevitable, but never, NEVER doubt your ability to do this.........<3..........Vx

Anonymous said...

you are my hero.....and you are strong enough for whatever comes along....when in doubt look at the two beautiful, strong women who raised you and taught you about courage, strength and beauty. You give all of us your strength with every post.... let us give some back Bekah. Take from us what you need and what makes you stronger. We are here if you need us....

Val

Sarah♥ said...

Still reading and still thinking of you.

You are definitely strong enough, Keep fighting girl!

Much love...

Sarah♥

Rebecca Howell said...

Oh, Bekah, how much this sucks for you. I'm sorry this has been such a difficult time, I know it seems like all you can see is the darkness. Just know that for many of us, you are the beacon we look to, but that it's okay that you aren't all kittens and rainbows every day.

I love you.

andyson said...

I'm sorry to hear about all of this. To let you in on a little secret, I'm scared too. I'm going down the same path and look to you for strength and a cheerful attitude. But I know there is only so much a person can take at one time.

You are one of the rocks on the HL boards, one of the folks that chimes in and tells the new folks to our club that everything will be ok. But I know that even rocks crumble a bit now and then. It's only human. As scary as it is to think about what happened to Scott recently, as is said on the boards all the time, everyone is different. As this is a war we fight with this damned disease, sometimes there are very painful casualties.

I'm here for you to give you support, and since I am pretty sure you don't live too far from my fiancee and I, if you need anything, please let me know.

Brian

Kerry said...

Becka..I am a lurker.Although I am older, I have been dealing with NHL for 11yrs. I have had it return and struggled.
I to have lost some very special people. Some died very fast. and others lived longer then I have. Every person I met with lymphoma...struggles with it and fighting though it.
Last year a very good friend I met on line went through SCT, 11-27. I met her Dec of 2005 when she was first dxed. She struggle and struggled to that point of Transplant. I struggled with her knowing it would be a tough experience. Ironically she was cancer free when she died due to lung complications 1-30-2008.
I was horribly crushed,and there are times I wonder..Why her? Not me. Its so horribly unfair this thing. IT hurts and reading this made me cry, cause only God knows why.
I don't think you are selfish. Your human if anything.I think there is such a bond between those of us who have cancer and that's the hardest thing. I wouldn't change that ever. As painful as it seems it always hits me death is part of life.Life is terminal no one gets out alive not you me or anyone else.
I just pray that whatever your next step is...That everyone close surrounds with support the support you need. I understand I really do..take today and care for you.

laulausmamma said...

Dearest Bekah - how heartbreaking for you to lose another close friend to HL. No wonder you are discouraged and feeling so down. You have the weight of the world on your shoulders and every reason to feel weighted down with sadness, confusion and worry about your own strength as you continue your battle. You have proven yourself to be a true warrior...ready to face each step in this battle. As it's been said before...it's ok to feel down and low...as long as you pull yourself up and brush yourself off and keep fighting the fight that's worth it...and remember that "you" are worth the battle. Your army of supporters love you to pieces. Continue to lean on us for strength, support and encouragement whenever you need it.
((HUGS)) of love and support...as always.
Susan

katmm said...

Just 2 quick thoughts...

You are strong enough and the fact that you have doubts and can share them, proves that point.

And, I understand.

K

j said...

i hear you
and yes...
you are strong enough

chin up
get your fire goin
and go girlie

we will see em all
on the other side

love ya
j

Anonymous said...

Bekah,

I wish I had the words that you always have for me.
You are a true beauty.

Jane Owen

Anonymous said...

Oh Bekah, dear,

As long as remember those who have gone on before, they are never really gone from us. We miss them like crazy, but we keep them with us always.

And you keep them alive for everyone. I don't think you really appreciate how much your words help others.

It may, at times, seem that there is no rhyme or reason to life, who dies and who lives, but the contribution that each of us makes to others along the way is so important.

You are important and you touch the lives of others is so many positive ways. You are a healer.

Sarah and Scott's lives were enriched because they knew and loved you and it was mutual.

Question, wonder, speak of it all, share your insights and wisdom - the world needs you. Thank you.

Linda, Darcy's Mom.

Brandy said...

It's good to realize that life isn't fair. period. But don't allow that to hinder how you live. We could drive ourselves crazy wondering how and why we survived, got Hodgkins, etc...All you have is today and you have been blessed with eyes that see so much more than most people and a heart that loves and feels so much more than most people. Live. Live. Live. And take in this beautiful world we have, the amazing friendships you have formed and absorb all the love that is around you. We all die, Bekah. No one is immune to that. But we have been given a gift to make an impact on those around us and to really know how lucky we are with every sunrise and sunset we are able to witness. You are a very strong woman, maybe not so much physically right now from treatment, but spritually you are...unbreakable. Sending you hugs from Texas.

<3, B

Adrienne said...

I think this is beautiful, hard to write, I know, but still beautiful. It's awful to lose people you love, harder than anything imaginable, and with our cancer friends, we lose more than most. It's so unfair. Grieve as you need to and then get on with life, as Sarah and Scott (and us too) want you too. Big, big hugs and love, Alison

Anonymous said...

Bekah a lot of people don't realize this fact that we learn through our disease. That we really are mortals. That even very special people die despite being fierce fighters. I appreciate your post and I've been there to some degree. Your strength is there. It may not feel like it right now. Treatment pysically and mentally beats us up sometimes. But you'll be back up soon. Sending hugs and love. Nancy

Anonymous said...

Hi Bekah,
I am a friend of Hillary's - she mentioned you on her blog this morning. You, too, are beautiful, intelligent, and introspective in this time of crisis. You will get through this with your continued fight and you will educate others as to how they can cope as well.
Be strong, Zoot