I am always, always, overwhelmed by the amount of love and support I receive from so many, across the country every time I receive bad news.
I feel as though I should realize by now, that this is how the people in my life are. I surround myself with the most beautiful, heartfelt, and sensitive souls in the world. To say that I'm lucky to have each of you would be an understatement. Because, I feel the love, so much, in everyday through emails, notes, phone calls, ect.
And I feel fortunate enough to know, that life is precious, and that this is truly the meaning of life. To make these connections, these relationships, and see the pureness of each person in my life and how I care for them, and they care for me. In times of hardship, I feel blessed to have such an army of supporters by my side. I'm not sure many people can say this. But I can.
As for my lovely title. I just want to clear up some misunderstandings that I've received in emails, comments, and phone calls. Although the disease is spreading and I would consider this incredibly alarming. There are still options out there for me, if I choose to do so. I appreciate the concern, how touched you all are, or at least express. And yes, the severity of the situation is pretty high up there. But, at the same time, I feel that there is a proper way to handle this kind of situation.
The proper way for me, is not ... running around like a chicken with its head cut off ;)
So, let's not freak out yet. okay? One step at a time. I will let you all know, when to completely be alarmed. I promise.
Now that the initial shock of cancer returning is in play, I have set up two appointments tomorrow at Upenn, and two at Dana Farber, and am hoping to have a third in New York. All with lymphoma specialists, and lymphoma radiologists. We are getting the best of the best to make sure we choose the right next step.
We can decide to go for radiation, or straight into a clinical trial. The difficult part about clinical trials is that they are still in the early stages of being approved by the FDA (Federal Drug Association); however, there are some really good ones out there that people are able to live normal lives, with small side effects, and are maintaining their diseases. There are also other ones that are more toxic, but have a higher chance of a possible remission. All in all, its A LOT to decide.
So, we will take this a day at a time.
First stop, is Upenn tomorrow. We'll gather information, then head to the next appointment, and the next. By the end of the week, I hope to have a plan of action.
Again, you all are absolutely wonderful. And I still, to this day, do not know what I did to deserve the outpour of support from every single one of you -- but, I will certainly take it.
All my Love,
B
12 comments:
Now....that's the Bekah we all know and love.
Warrior Women are humble and do not appreciate their greatness.... which is why we marvel at their courage & beauty
Val
Hey Bekah-
I forgot to say this, but if you need the name of someone in New York, my oncologist only does lymphoma, and I know there are a couple at the hospital that only do lymphoma, but I'm at New York Presbyterian/ Weill-Cornell, and I'm guessing you probably want Sloan-Kette ring since they're the big name. If you want it, let me know. (through facebook is probably the fastest)
Mary
What a relief to hear that you are considering your options. WHEW! But I do admire you for not running around like the headless chicken I'd probably be if I were in your shoes.
Blessings to you and yours. I'm going off line for a week but I'll be back to check on you and will be thinking of you even when offline.
Beks, I like the plan of action. Please let me know if you need anything.
XO
PS I heard a rumour that a certain Scot might be interested in visiting you soon :)
Glad you have a plan of action set in place Bekah. Good luck sorting through all of the info you'll be given to make a tough decision.
As always...sending loving ((HUGS)) of support.
You so rock!
Hi Bekah,
Just wanted to let you know that when Bill relapsed after his Auto-SCT (his response to the SCT was much like yours, the cancer came back within months after the SCT), he was treated with radiation and it worked. Now though he will need to start a clinical trial and we are looking at "Lenalidomide" or "Revlimid" (how it's sometimes called). There are SO many options thankfully.
Good Luck with everything and you are in my thoughts and prayers.
Love,
Cathy
aka life32 on lymphoma.com
"Warrior Women are humble and do not appreciate their greatness.... which is why we marvel at their courage & beauty"
Well said!
Love you, B........Vx
Hi Bekah,
Darcy's Mom here. I just want you to know that you are in my prayers every day - Your name is on my meditation list next to my computer at my office, a reminder each morning to take a minute and be thankful for all the blessings I have and sending out the thought for blessings and wellness for you. Darcy benefited so much from your love and support and encouargement - your generosity of spirit is a wonder.
Please tell your Moms that I think of them each day as well - it's hard on Moms!!!
Hugs to you.
Linda
I think about you everyday darlin'...every, every day. Keep a cool head if you can, and rely on all of us that love you to help you out in any way. Please, please let me know if there's anything I can do.
Much love and squishy girl hugs.
D
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