Friday, January 18, 2008

You must be able to see the beauty in pain...

Darrel Hale , is one of the most stoic, sensitive, and profound survivors I have met along this cancer battle. If anything, I attribute my ability to form these thoughts from our long, lovely, conversations.

I feel, in life, we are able to see the pureness and beauty in the most painful and heartbreaking, situations. This beauty can consist of, your inner strength, the light inside you, the relationships around you, or something as simple as pausing and realizing for the very first time, how the sound of your feet crunch lightly in soft snow. The perfection of that action, the beauty, that you see -- that maybe not everyone else takes the time to cherish, and place delicately into their heart. But you are, you can see it. I can see it. I am determined to find the beauty, in this.


  • Stage III Disease
Yesterday, I would consider was one of the most emotional days for me and my family. We had appointments with my original oncologist team who treated me through my first chemotherapy, my new transplant doctor, and a fertility consult. The news that probably hit us the hardest was that I am at a progressive stage three disease. We were surprised with this result, because of a recent, clear x-ray done in mid-November. We walked into the doctors office thinking I would be in the early stages of this disease since it has only had a month to grow. Apparently, not. So, we took a breath, a deep one.

Luckily, the transplant doctor,
Dr. Sunita Nasta - one of the top transplant doctors at Upenn Hospital, does not seem phased by the status of my disease. She is a calm, confident, women who has had very successful transplant treatments, under her care.
  • Infertility
Lastly, and certainly the furthest thing from my mind, but the hardest to accept will be my infertility as a result of ICE and BEAM chemotherapy. I still have yet to digest that one, and will probably do so after transplant. I do not believe there are reasons for this, but once again know that there are other ways to be a mother, that I will turn this negative into a positive when the time comes.

I believe, honestly and truly in this concept. That I, as an individual have the capability to find true beauty in what I am about to endure. I once again have the choice, when I look at these appointments I have the choice to curse up at the heavens, to wallow, to cry with heartache. Or I can see through the pain, I can see push myself to see the good. To recognize that I have doctors, I have the possibility of a cure, I have people who love me, deeply. I have a fierce, fierce spirit that has beaten the odds before. I have beauty in myself, and in all of you. And through all of this, I hope you allow yourselves as well to see the beauty in life, even in our time of pain.

Chemo begins: Wednesday January 30th.

-B

----
Today I miss: being a teacher
Today I smile for: breakfast conversations
(airdales in red snow boots)

Today I am grateful for: my brother and sister.

17 comments:

Duane said...

Hi Bekah,

I could be wrong, but I think I've seen you on the WebMagic Forum where I'm a member too.

Wishing you the absolute best and I'll continue to follow what I expect will be amazing progress.

Best always,
Duane
http://journalofaprizefighter.blogspot.com

Laura said...

Hi Bekah,
I don't usually post much on the webmagic forum anymore but wanted to tell you that I went through exactly the same shit over 4 years ago, the ICE, the auto transplant, and the fertility loss at age 23-24. It's very hard but you will get through this and you will be happy you did it! If you have any questions please feel free to email me laulaubee79@yahoo.com
I'm Laura79 on the forum, I also live near Boston and work now for Dana Farber.
Hugs Laura

Veronica said...

Ugh - you've made me cry and smile at the same time - not a pretty sight (contortionist face!!) - I'm going to sound like a stuck record, but you ARE amazing..........just thought you should know, in case you'd forgotten since I told you yesterday ;-)..........xx

Anonymous said...

Bekah-
How much I love your strenth and devotion to beat this damn cancer. Your love for life will help you, and know that I am behind you, even if I am not physically there.


San-dogg

Anonymous said...

i love you.

Dr. Ebz said...

Greetings Bekah,
I hope and pray your treatments go well. My Hodgkin's is currently in remission. I was diagnosed with Hodgkins Lymphoma and Renal Cell Carcinoma in Dec 2006. Surgery and Chemo have gotten me this far.

Hang in there. Take it one step at a time.

Be well.
-Scott.
http://scottscancerblog.blogspot.com

Anonymous said...

Hi Bekah,

I'm not sure what ICE is but I had cyclophosphamide then BEAM for transplant. (Not many people on the Hodgkin's board seem to have BEAM, but it's put me in remission for the last five years.) They said I'd be infertile too (2% chance of being fertile), but my periods came back, hormones seem fine-ish and now my doctors are saying not to assume I'm infertile and be careful! So there's still a tiny chance. But it's hard. I know it's hard.

Best of luck, thinking of you. Oh and you might want to get a big bunch of passport photos taken before transplant. I really wished I'd done that. Once it's all over you don't want to be reminded of chemo everytime you see an ID card.

laulausmamma said...

Dearest Bekah...

You are a "true beauty" - inside and out. It's an honor to read your blog and call you my (online/forum) friend. Your spirit gives me goose bumps all over (kind of like Mr Hubbahubba gives you I'm sure). Feel the love, positive vibes and warm hugs that are always being sent your way.

Susan

Mary said...

Dear Bekah-

Just another note to say that you're in my thoughts. Although I haven't been through what you're going through now, I can remember from when I was diagnosed the range of emotions I was feeling. It sucks. It sucks having more than one disease too as we've discussed before. I remember things got better once the treatment finally started and I knew I was doing something to get rid of the stupid cancer. I hope the same is true for you. I know you'll get through this. Take Care,

Mary

BaldyLocks said...

Sorry about the recent news. Your beauty and strength shines out from your posts.

Your strength is what will get you through this.

Be well

Anonymous said...

beautiful...
j

Brandy said...

Hi Bekah,

I just wanted to say you have a gift for touching people and although we've never met, it seems you are an 'old soul'. Your wisdom and strength at such a young age shows through even computer monitors. Wishing you wings to carry you through this and that time passes quickly.

Best wishes,
Brandy
charmedx4 on the HD forum

Anonymous said...

Your an inspiration and a beautiful person. You take that strong spirit of yours and give it hell Girl!

BaldyLocks said...

Infertility can be hard but I'm so pleased you said "there are other ways to be a mother." That's true love right there.

You'll get a chance to grieve that loss, when it's right, then you'll be able to move on to your other options. Love is not bound only to your own biology.

But you know that.

Lots of love

Sivan said...

Dear Bekah!
My name is Sivan and I'm Bri's sister in law. Bri is so lucky to know you!
You are amazing! You are a beautiful woman! You managed to make me cry and give me hope and strength at the same time! You touched my heart.
You are in my heart and thoughts and I will keep following your blog.
Take care and be well,
Sivan.

Anonymous said...

To my kindred-spirit,

You continue to amaze me with your strength and good spirits. I am blessed to have you in my life.I hope I can share with you the things you've missed when all of this is over. I love you!!

Steve said...

Bekah, good luck on Wednesday - I'm looking forward to seeing you kick this crap's butt.

Steve